Monday Update


***If I were you I would just skim this.?? I wrote way more than anyone truly wants to read.?? I am using the hospital laptop and since Tori isn’t sleeping, neither am so I am rambling on and on to give myself something to do.*****

It’s 12:40 AM Monday morning and obviously – we are not sleeping.?? :)?? Tori slept all day.?? Saturday night she fell asleep at 11:00 PM.?? She wasn’t awake until noon on Sunday and then only stayed up an hour.?? She was up another hour between 2:00 and 3:00 when they had to redo her IV and then slept again until 8:00PM and back to sleep by 10:00.?? Therefore, in a 24 hour period (11:00 PM to 11:00 PM) – she slept TWENTY HOURS!?? I was getting a bit worried but knew the sleep was good for her.??

I didn’t want to hold her in the rocker all night because my back was hurting so I held her until midnight and then tried to switch her to the crib.?? Didn’t work.?? She woke up and now I am trying to wait her out and she is working on removing all her chords.?? Also some singing and “Hi’s”.?? Makes me smile though because there has been almost none of that today.?? I can hear the crackle and popping in her lungs (nurse taught me to hear it with stethescope) and it is on the incoming breath (what is that word?) instead of the outgoing which is “worse” but overall she is not that bad off and has not needed more oxygen today.?? She is grunt breathing when awake though – typical of RSV.?? Expends too much energy while awake and it’s more of??a struggle to breathe.?? She hasn’t wanted to take much of her bottle today atall.?? I gave her a bottle at about 12:30 but she would only take 1 ounce of it and only took 3 ounces of the last bottle many hours ago.?? Has had a fever all day but under 102.?? (All temps rectal – mama insisted because under arm was not showing accurate for her AT ALL).?? Her blood pressure was a lot higher tonight than it has been.?? The last two checks were around an 88 and 70 something bottom number (forgot top but seems in the 120s).?? Don’t know what that means but the nurse said it was high for her.?? At first I thought it was wrong but they did it three times with her being very still and they said it was accurate so….??? Don’t know what’s up with that.

She has been very attached to her pink pony wub a nub this weekend.?? Wondering if this trip to the hospital has turned her into a genuine pacy baby.?? She has always needed it to fall asleep but she hasn’t been like Tanner who had it all times (remember what a nightmare that was to break?).??

The only thing that has made her happy is Sonic crushed ice.?? Like mother like child.?? :)?? I know these updates are longer than you really want to read but documenting all this for future reference.

Jim, Tanner, and Ty all feeling pretty lousy.?? Maybe it’s better we are all seperated right now.?? :(?? I think they are going to do another chest xray in the morning to compare and I know they want her on another full day of IV antibiotics so we’ll be here until Tuesday at least I think.??

Note to Aimee:?? We need to reschedule Zane’s pictures. ๐Ÿ™

Note to family:?? No idea when we will do Ty and Tori’s party.?? If you want to go ahead with Zane’s this weekend without us that is fine but even if Tori gets out of the hospital in the next couple of days, I can guarantee she still won’t be safe around people by this weekend.??

Dang – she fell back asleep and now I am going to have to get her pulse ox back on without waking her.?? Plenty of practice with that though.?? I am up to my usual antics.?? Telling nurses what to do and what not but being very nice about it.?? :)?? Letting them know when I am going to be silencing alarms and watching baby, changing her med schedule…you know me.?? One weird thing.?? Again (third time) today they took a rectal temp and told me it was 98.?? I said (nicely) “I am sorry but that is incorrect.?? Can you please bring another thermometer in – we need to take it again.”?? Guess what it really was??? 102.8.?? Tonight the nurse came in (new nurse), felt her and said “she feels really good”.?? I said “She is about 99 ish and climbing”.?? Nurse smiles gets thermometer and checks.?? 99.4.?? Then says “Guess mama knows her baby”.?? :)?? You can’t really feel Tori’s temps on the outside unless she is at 102 or higher.?? She can feel actually cold on her extremeties and be 101 plus.?? Mom’s just know this stuff though when it’s OUR baby.??

As you may have noticed in the comments, my friend Sarah is in another local hospital as of today with her four year old.?? He is asthmatic and has pnemonia also so please pray for Luke too.??

I am really worried that Tori could catch this again before its gone through the family.?? Wondering if they will approve synergis shots for her now through the remainder of the season but I doubt it.?? Also wondering if being a preemie contributed to her struggle with RSV.?? Most babies don’t end up in the hospital with RSV and almost all children will have it by the age of two.?? It is not a virus to be “feared” unless you have risk factors.?? (Prematurity, infant, elderly, asthmatic, CF, resp issues…etc.)??

She woke up again.?? I figured with 20 hours of sleep tonight would be difficult.?? I can tell she is tired though so I bet she goes back out pretty soon but we may engage in this little dance all night.

One cute thing.?? That hour she was up around 12 noon today – I was walking her around the room and her monitor kept beeping because her pulse ox wasn’t picking up good while mobile.?? It was bugging both of us (later I just let nurses know I would be??silencing alarms in these situations but at the time I didn’t do that).?? After several minutes of this annoying chirping it went off.?? In surprise, Tori looks over at the monitor and points to it and looks at me with this wide eyed expression.?? It was like we both shared this moment of relief and she wanted me to know that she also was grateful it shut up.?? (Karsyn can’t read so I can say that.?? :)?? She communicates a lot with just her eyes and a pointing finger??- just like me. ;)??

The boys said they missed me but I had to prod for that so there was – I feel -?? lack of sincerity.?? :)?? From the sounds of it, though they are sick, they are still having a mighty fine weekend with their Dad.?? Jim is such a great Daddy.?? I called him today to tell him that the boys needed at least 1 ounce of fluid every hour to keep hydrated while sick.?? He says “Only one ounce??? I have been making them drink??a cup of water every hour.”?? :)?? Overachiever he is.

Watching Tori sit in her little”native” squat right now.?? Have I mentioned that??? I have a picture of it so I’ll have to post soon.?? She sits squats with her bottom touching the ground, her thighs real close to her body and flat footed.?? It is virtually impossible to imitate.?? I have looked quite silly attempting it and so have others that I insisted give it a try LOL.???? A nurse saw her do it and wanted to know her nationality because she assessed that only certain people groups had the ability to sit that way and said it looked quite Indian.?? It is super cute.?? Well…afraid I am going to have to hold her in the rocker because she looks no where near falling asleep without me.?? She is fussing at me right now and trying to sing to herself.?? That of course means, I am tired mama but I am NOT going to sleep without you so if you want any rest you better come rescue me.?? Off I go.


18 responses to “Monday Update”

  1. I am doing the only thing I know to do for you guys right now. Praying like crazy. Love you all.

  2. Hope you were able to get some sleep last night and thanks for the updates. Continuing to pray for a quick recovery for all of your family. Take care of yourself too!

  3. I bet her prematurity is a factor.. Nate caught RSV at 2 and half… the first season he went without synagis.. Spent a week in hospital and had to come home on oxygen.. Took 3 months to wean him back off..
    We are going for x rays today to see if he has pneumonia..he’s been home from school since Wed last week!

    I will keep you guys in our prayers!
    Hope you get some sleep soon.

  4. love your comments about jim and fluids with the boys. ๐Ÿ™‚ my hubby is the one always asking what seth has had to drink around here.

    i love your ramblings and didn’t skim a bit. ๐Ÿ™‚ i can’t wait to see tori’s little indian squat. ๐Ÿ™‚

    still praying and loving you.

  5. OH Doni and sweet princess Tori,
    We have been praying for you guys and so has Malakai. Hoping you come home soon. I too read every word and who wants to skim anyway?! lol You are such an amazing mommy! Love you. Hang in there. xoxoxo

  6. Oh Doni I am so sorry to here about your struggles with sick kids. Nothing is worse than when our babies are sick, much less THAT sick! My thoughts are with you and I am praying for you and your three babies fast recovery. You are such a great mom and quite an insiration. I cant believe how tough you are under such stress. I would be a reck! Praying for help in that area for myself as well. Take care and thanks for the detailed emails.

  7. No way will I just skim, I want to read every rambling you have! ๐Ÿ™‚ Praying and praying for Tori! You’re right, Jim’s a great Daddy, no doubt about that! Love you! (e-mailing you now)

  8. Doni, I hope you don’t mind…

    Sarah R. – I went looking for your e-mail address, but was unable to find it. I wanted to let you know that I’m thinking about and praying for your Luke as well. If you would like to “talk”, feel free to e-mail me any time. tslove28@msn.com

  9. Doni, I am so sorry I have been away from the computer this weekend and didnt know anything was up. I am sorry I didnt get any prayers in before now. I hope all is getting better. Poor Tori. I cant believe what you have been through, what Tori has been through. I hope the boys at home are getting better too. I will never skim over your postings, you always keep everyone up to date, as we all want to know whats going on. I hope things are getting better, Love…. Hugs and kisses and of course prayers are all being sent your way. Wish I were closer so I could help out and visit too.

  10. Doni, I too, am just finding all of this out. You almost never post on the weekends, so I didn’t even check until this morning. I’m so sorry to hear about Tori–I was feeling anxiety just reading about what you went through the day you brought her to the ER so I can only imagine what you were actually experiencing. You knew something just wasn’t right and weren’t buying the whole allergy diagnosis. Mommy’s KNOW their babies! I will be praying for both of you and your sickies at home as well. Love you.

  11. I am still praying for Tori, and everyone else in your family as well. so sorry everyone is so sick. So glad to read the updates on Tori. You are one amazing mama! Will continue to lift you up in prayer!

  12. I’m trying to remember if Ben started getting shots after his bout w/ RSV (at 5 wks old – was around this same time of year). I know he took them for 2 seasons so I believe he did start taking them soon after he got out of the hospital. I know we had to fight w/ the insurance company to get it approved. I soon found out why… the 2nd year it took 2 vials and was almost 3 thousand dollars. Geeze! They worked though. He didn’t get it again even w/ 2 older brothers in public school bringing home all sorts of germs.

  13. I was thinking about you all day but my cell had an almost dead battery. I survived my first night with a kid in the hospital, barely. I wound up sleeping (if you can call it that) in the bed with him. Luke is still on breathing treatments every 3 hours but they did reduce his oxygen to 1.5. He had a few moments of being Luke today but is still pretty quiet and fussy about the whole hospital thing. He hates those nose prongs. Eric decided he wanted to stay there tonight so I got to come home. I feel bad for leaving and I want to be there to know what’s going on but 2 days without sleep is not good.
    When do you think Tori will get to come home? Thank you for including me in your post. Luke certainly needs all the prayers he can get.
    Kristi, thanks for your little note.

  14. We would always unhook Devin’s pulse ox if he was up and moving around, with it being on his toe it was useless when he was standing up. The nurses were fine with that, they would come spot check him once in a while and as long as he had good sats then they were fine for him to roam free. I think GOOD nurses are happy for your help and trust that you know your baby and know when they’re ok to not be monitored and that you’ll also know if they start back down hill that calling them is the first thing you’re going to do. I had two FABULOUS nurses one for all three days and one the first night – the nurse we had for the second night was just ok…

    I’m still thinking of you all and praying for you. I hope that no update so far today just means that you’re tired or better yet you got some sleep and not that you’re having a rough day!

    I can’t wait to see the squat picture – I think Devin does that too.

    Take care!

  15. Oh I’m so glad your on your way home!! I hope it will be better rest to be at home again. My kids are super sick too! Graham has croup and on steroids, Braxtyn an ear infection and looks like her constant cough may turn for the worst tonight. Noah is finally coming around. Boy this stuff is nasty! Hoping you and I don’t catch it, mommies don’t have time to be sick!!

    Also praying for Luke, hospital time is so tiring!

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