Before I forget….
The home health care nurse came to give Ty his RSV shot today. She weighed him and he was at 20.8 pounds and still 30 inches long. Last month when she came he weighed 20.6. A little concerning that there has been no growth this month HOWEVER, he has been ultra active and has not been eating. His change in eating could not have come at a better time. It appears he is just now at the point that formula isn’t going to cut it and thankfully, he is now eating 2 stage 2 jars per day. Hopefully that will give him the boost he needs. The home health care nurse also told us that while this RSV season has been slow, it has also been devastating. Babies that were not deemed high risk for RSV are contracting it to a life threatening level. Even babies current on their RSV shots are being devastated. Please pray that Ty does NOT get RSV! This means that we may not be able to come out at the end of the month like we hoped. We’ll see.
Also, you will notice that in the left column under Links I added a new link called “Ty’s Milestones”. I added this page because sometimes people are looking for specific information on Ty’s development and it is hard (even for me) to find it wading through hundreds of journal postings. Just an FYI. I will be adding one for Tanner soon too. Consider this the quick reference section LOL.
15 responses to “Ty’s Milestones”
I’m so glad you’ve been so protective with Ty and that the Lord has had his hand on him – I’m sure that has been the key. May He continue to protect your boy from these illnesses.
I’m so glad he’s eating! GOOD BOY! The weight thing does sound like it’s not much of an issue – Ty is incredibly active and that burns a LOT of fuel. Would you believe Seth is only 26 lbs – almost 27 on a heavy day? Ty’s not that far off! Lean-mean-crawlin-climbin-machine! 🙂 Wahoo – go baby!
As you know we came a little to close to the doors of heaven with our little Ryan. RSV is very scary and I will pray that you will never have to go through it. Please also mention in your RSV advice that although we all know how scary it can be, it also carries many lasting problems. My little Ryan still suffers from the RSV, he has had to obtain breathing treatments because of the scar damage in his lungs ( caused by RSV ) he has had two colds that have been a struugle to get over, it took about two weeks after he returned home from the hospital to eat right. RSV is not just a moment thing it can also be carried out into weeks after the first set back. Both Landen and Ryan got severly sick because of RSV>
Doni, You are doing the right thing being so protective of both Ty and Tanner. Your sacrifices will be well worth it! Ben had RSV at 5 weeks old. We were in the hospital for a week and he was on breathing treatments for 2 years. That was 4 years ago when there wasn’t a lot of information available for parents about the virus. I didn’t know until after the fact how seriously sick he was. The sad part is that he more than likely got it from one of his older brothers. The doctors told me that most kids get it at some point and it seems like a simple cold. That is very important information that needs to be stressed to every mother of a newborn w/ older siblings. Yet, I had NEVER heard of it. I am so glad to see the commercials on TV and ads in magazines about the seriousness of RSV. I think every new parent should get DETAILED information about how to protect their babies esp if they have older siblings who attend day care or school. I took Ben to the children’s clinic for two years to get synagis shots…how wonderful that you have a nurse come give Ty his shot. There’s no telling how sick well-babies get when they go to the pediatrician. Ben was only 3 weeks early so he didn’t “meet the criteria” for the shot. I had to fight hard and mean w/ the insurance company to get them to pay for it. By the 2nd year it took two vials and was costing 3 thousand. Well worth it! I’ve learned a lot from you about being the best advocate for my children! Stay well Ty man! Summer will be here before you know it!
Wow, I would say Ty is doing great in the growth department!
If it makes you feel better, my full term 8.5 pound monster is now also 30 inches tall…and not 17 pounds yet. You think Ty is skinny 🙂
However, my monkey is eating two stage 2 jars 3 times a day and 30 ounces of formula…I think wiggly and active babies just burn those calories right up! I have learned to read the baby food labels, some jars have a lot more calories than others….the fruits and sweet veggies have more calories than the green veggies. Also my homemade peas and carrots are a lot thicker than the jarred ones, so I assume they have more calories and more vitamins 🙂 My doctor also said to feed him more cereal, and mix formula powder into his food. God just gave my man a ton of energy….now if only I had just a tiny percentage of his energy maybe I wouldn’t have all this weight to lose 🙂
My son wasn’t a premie but my little one still got RSV. He was 8 months now 9 months. But we are finally off the breathing treatments. Even with him not being a premie it was scary! He did get it from his older brother (4 years) who goes to school with 29 other bactieria carring kids. I try my best to keep them clean and the house clean but sometimes it just doesn’t go the way you want it. He got it while we were on vacation! At any rate Ty’s growth rate is wonderful! My little one born 28 Mar is barley 18lbs and 27 inches long. And climbing out of cribs! GEE he started early…lol Your doing a wonderful job Doni! I hope you know that!
Jere’
Hello – My son Trenton was a premature baby, born at 26 weeks. He took the sinagest shots for the first 2 years, (insurance wouldn’t cover them after 2 years of age) but of course when he was 2 years 3 months he got RSV and we almost lost him. I took him into the emergency room and asked them to do the RSV test. The doctors and nurses were telling me he was to old to have RSV it was probably just pneumonia. After x-rays were taken and no sign of pneumonia they were going to admit him for observations. Before he left the ER the nurse said that she was going to do a RSV test just to rule it out. Sure enough he had it!! (Heaven forbid they should listen to the mom!!) That was at 3 in the afternoon. By midnight the doctor came in to tell us there was nothing else they could do for him and he probably wouldn’t make it another 24 hours. I refuse to except that answer and demanded he get transfered to Methodest hospital in Rochester, MN. The medicopter flew him over there and within 24 hours he was running circles around the nurses. They saved my little boy! Because of RSV there was alot of damage done to his lungs and he now has asthma. We live in Minnesota and the winters here are very hard on him, but he is a real trooper. “Normal” children probably don’t get RSV after 2 years of age, but our children don’t know how to do things “Normally”!!
I don’t know if my rambling will help anyone, but I just thought I would share my story. – Kristen
Real encouraging Kristen LOL! Even though it is discouraging to hear, I am glad to hear it. Us mother’s of preemies need to know that there is no “magic” number for safety and we need to be very cautious with our kids. Your words have served to affirm that we are doing the right thing by waiting longer to expose Ty to the big wide world. Thanks for sharing (and so glad your little one got the care he needed!)
and reassuring that moms MUST trust their instincts and FIGHT on their children’s behalves sometimes. imagine if kristen had just listened to that first doctor. kind of makes you want to go back and stare him in the eye and give him the name of the medical staffers who saved your boy so he can take a few lessons from them! i’m so glad you had it in you to fight for him. i can only imagine the torment you were in those 24+ hours. thank you Lord your boy made it through.
doni, makes me feel relieved my visit is being put off as it gets you farther away from the riskiest parts of the season. hopefully we’ll be there at a time that is safe to see ty and let the “big” boys play together… if not, we’ll hope for that window visit. you MUST protect that boy at all costs and i’ll support you 100%!
Speaking of RSV, we just got through with that 3 weeks ago. Cason was not premature (Cade was, 36 weeks, but thankfully he never got it) but he got it somewhere. That was the worst week of my life & seeing your baby that sick is unbearable. Cason’s treatments were not working; when they finally told me there was nothing else they could do for him, they decided to do a chest xray just to “see”. Yep, Pneumonia too. And Strep. After the fact, & since I had never been thru this before, I now know without a doubt he should have been hospitalized. But, here in Texas there were so many RSV’s, Cooks Children’s Hosp. wasn’t taking them (only under 2 conditions, which Cason didn’t have). Cason had 36 breathing treatments in less than 24 hours. And, two medications combined. Then antibiotics. Next year we will stay in! I don’t ever want to go thru that again & I hope to never see another baby experience it either. 🙂
Melissa, hearing that RSV is so high in Texas makes me feel REALLY relieved that we’ve been so protective of Seth. We are pretty cautious parents as parents go anyway – but with illness stuff we’ve just felt strongly in our spirits to be careful. Who knows what we may have protected him from. At the start of winter we went to a church where we felt really uncomfortable with the nursery – it wasn’t very clean, the people didn’t seem to have good cleanliness habits, and lots of children seemed sickly and cold-ish but they let them stay anyhow. We didn’t feel right putting Seth in that nursery – especially not through winter months. The more I hear about RSV the more thankful I am that we trusted our hearts on this one. Now he’s older and much more likely to be able to handle something harder than the average cold. To me it’s just worth it to be cautious but in our case, it was more than a germ-freaky thing which I’ve often brushed it off as being as we’ve been tagged that from some family friends – truth is we simply felt strongly in our hearts about it and I think we were protected in that.
Glad you little guys are doing better – how old is he now – and when hospitalized? Had to be so scary. Thank you Lord he’s doing better.
Heidi, do you remember me? I contacted you via email last year & asked you if you knew who in Weatherford, TX was praying for Ty because I used to live there….LOL! 🙂 I’m such a dork! I live in Keller, which is somewhat close to you. 🙂
Anyway, don’t even get me started on church nurseries. I love my church but I have to admit, & any pediatrician will back me up, church nurseries are the worst! Absolutely drives me insane. When Cade was younger he was sick so much we actually pulled out of church just because of the sickness. And I’ve done the same with Cason & now Cailyn. Cailyn is not in the nursery yet (she’s now 9 1/2 weeks) & I already told my hubby to look out ’cause I don’t want to let her go…….
When we have ETC there are ALWAYS ill children in there. Mitch & I kick them out like hot potaotoes. But, we’re in there the 2nd half of church so if the SS teachers let the kids stay the 1st half, the “damage” is already done. The other innocent kids are already contaminated. Church nurseries are just a catch 22. Sunday night in one of our classes a young couple had a baby in there & the baby had RSV! Can you believe that? That poor baby! And the germs that poor thing was passing around! 🙁
You did the right thing holding Seth out!! I think I have finally learned that it does NOT matter what other people think. So what. You are the parent & you make the decision to do what’s best for your child. Dr. Phil says that too…lol! Cade will be four next month & Cason is now 14 1/2 months. He & Cailyn are one year & one day apart. Cason was born on New Year’s Eve, Cailyn was born on New Year’s Day. Oh how I’m dreading next December…lol! How old is Seth now? 🙂
I remember that now! 🙂 I just couldn’t remember all the details about your kids ages, etc.
I hear you on the nurseries – loud and clear! And am with you. I can hardly believe a family would take a sick baby to nursery – let alone RSV… I would never think of it. You know, Seth had sniffles last week come Monday and again this week come Monday. I REALLY hope I don’t start seeing a pattern to this after nursery mornings… argg…
The pattern we’ve seen at our church is – if the kids are going to catch something from their classmates, usually symptoms start Monday or Tuesday. Typically Tuesday. I have lots of references…heehee. Our church is HUGE & we have hundreds & hundreds of kids. 🙂
yup – i think that’s it – by tuesday the runny nose is worst… arg…
my little megan was a month old when she got rsv. it happened so fast she was sneezing one day and purple and not eating the next. the doctor immediately rushed us to the city, and from there to a university hospital.the doctor here said a lot of kids dont make it here in time, i was horrified because i had never heard about this before, she was in bad shape she kept quitting breathing, her lungs were closed off. my husband and i sat beside her bed for 8 days to help her be as comfortable as possible. we finally got to take her home but she was still not totally well. now it is 4 months later and it seems were in the hospital every other week for breathing treatments. megan is much smaller than babies her age as a result of this. i thank god everday for my megan and god bless the other children in the world.