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Between Ty’s surgery this week and my mom’s surgery, we have been pretty busy. I have contracted some virus and have a sore throat today and am paranoid that the boys will get it. I really don’t want to end up back in the hospital with the baby!! Maybe he could handle a minor cold okay now though?
One of my brothers was expressing concern today over the situation with mom. A comment was made that in our family things seem to go from bad to worse so you tend to get paranoid. I thought about that and decided to post something tonight on keeping things in perspective and being grateful for the mercy that God has allowed this year.
Yes Jim and I lost 10 babies in miscarriages and yes several more that we had hoped to adopt….BUT God gave us Ty this year.
Yes Ty was born a micro preemie and this has been a very very tough year…BUT Ty lived and he is doing just great.
Yes Daniel and Brooke had 3 miscarriages and were scared to death about future pregnancies…BUT Graham was born in Sept.
Yes Darin and Jodi had 2 miscarriages this past year…BUT they will be finding out on Monday if we are getting a boy or girl!
Yes Mom was diagnosed with cancer and had her kidney removed this week…BUT it appears to be stage 1.
God has rained mercy down on us despite all the storms and we are truly grateful.
God is good….all the time. All the time…God is good!
Playing Chicken Yesterday I was vacuuming the front room. I had Ty in his little walker (which generally he hates). Tanner seems to think that everytime I vacuum, I am playing "chicken" with him and he runs screaming all through the house. This time he wanted his brother to join in the fun. Imagine how fast a walker can fly across a laminate wood floor? LOL! Just kidding, I wasn’t letting him push it that hard. Even so, Tanner still dumped it and his brother landed on his head. (He’s fine). Tanner screamed louder than Ty and I both. I could tell immediately that Ty was okay (babies bounce – thank the Lord). Anyhow, Tanner kept screaming "Sorry Baby!" over and over. He actually injured Ty worse trying to hug him because he bonked him on the front of the head. I thought it was so precious that Tanner was so upset and concerned for his brother. I also appreciated the immediate accountability and apology…until….the tables turned on me. Tanner looked up at me and said "MOMMY!! Don’t chase him with dat ting!" LOL! I stared speechless. The blame had just been passed on to me as though it were my fault that Tanner pushed over the walker. The walker that I was NOT chasing…the chicken game is a figment of Tanner’s imagination. Kids…
Fear Factor On Sunday Papa and Sweetie were spending time with the boys. Tanner kept trying to get Sweetie to play with him and was begging her saying "Sweetie…play Sheer Shactor with da Shags!" It took a bit for us to figure out that he wanted her to play Fear Factor and have his cars knock over flags.
Actual Age: 10 months Corrected Age: 6.6 months Weight: 17 pounds 1 oz (11/1) Height: 26.75 inches(10/20)
Ty surgery update – posted Tuesday, Nov 16th
Ty had surgery on Monday morning (
. It was a bilateral eye repair. They pulled they eye muscles back on the sides of both eyes and stitched them in a different spot to align his eyes. The surgery was successful with a 15% to 20% chance of a second surgery later on. Our biggest concern was putting Ty under anesthesia. He did well this time with NO APNEA! Thank you Lord! Thank you so much for your prayers for Ty! Ty doesn???t acclimate to anesthesia well and did have a very miserable 24 hours, thus mommy is worn out. Yesterday he was either sleeping, eating, or crying. He is such a sunshine boy that he didn???t even know what to do with himself when he felt agitated. By
he was finally returning to his happy personality and began flirting with the nurses:)! He doesn???t seem to be in any pain but his eyes do seem to be irritating him. His eyes look straight but he will still cross them a bit for a little while until the muscles figure out what they are supposed to do now. Even though his eyes are straight, something still looks a little ???off??? to me. I think it is because he doesn???t use his left eye much so even though he appears to be looking at you with his left eye, it doesn???t look very focused. Hopefully this will improve as he begins using it more. We will still be patching his right eye a couple of hours a day for awhile to help him gain strength in the left eye. The insides of his eyes are very bloodshot. His left looks worse but his red eye is yucky too. You can???t tell this from the picture below because of the angle of the picture. Both look pretty red though.
Posting as of 11/18 Ty has been his happy little self since being home. His eyes don’t seem to be bothering him much. The bleeding looks a little worse though as the blood has traveled. I still think he looks "odd" because he isn’t really focusing well with the left eye but so far I am the only one that thinks this.
One thing that concerned me a little bit was a "trembling" issue. On Tuesday night I was holding Ty talking to Brooke and Daniel through the screen door and his whole body started trembling. I put my hands on his arms and contained him and he stopped. He did this 3 times. I have no idea what this shaking was about and he has not done it since. Scared me though.
Oxygen The home health care company came and took all our oxygen tanks today! Big step! We still have the sat monitor and apnea monitor though. I don’t want to stop using the apnea monitor until Ty is weaned off some of his drugs. His satting is not as good as it was. In fact, I wouldn’t be surprised if he failed a test if they did it right now. However it is so borderline that it would be tough to say where the machine might be reading a tad off. He looks fine and he acts fine and he is eating fine so I decided not to worry about it. He seems to be averaging between 92 and 94 during the night (he is supposed to stay at 93 or above all night). I have had to set his alarms at 89 (as opposed to the 92 that I had previously set it at) or he is alarming all night long. I told the Pulmonologist’s office this but his night study was sooooo good that they aren’t paying attention to this. I could argue the point and maybe I should but so far I really do think he is doing okay so I am just watching him closely. He is falling into the 80’s a few times a night but he is only there briefly.
ROLLING OVER Guess who decided to roll from tummy to back today???? Yep!!!! I now can officially say that Ty will roll over BOTH directions!!! Yippeee! Now I will have to get a bigger rug for him because I figure he is going to start getting himself across the family room simply by rolling.
Physical Therapy Evaluation We have temporarily postponed Ty’s speech therapy and occupational therapy. Both of these therapys cannot be done "in house" and we don’t want to take him out yet. We did find a mobile PT unit though that will come to the house and they evaluated him yesterday. Overall, he is doing pretty well but does need some strengthening exercises, especially in the upper body. An online friend wrote me this week about a Bumbo Seat that might be useful for Ty. I checked it out online and ordered one. It is the coolest little foam chair that does not require straps but conforms to babies lower pelvis area in such a way that it helps them learn to sit up. The PT thought this would be great for Ty. You can use it on babies 8 weeks and older. Here is a link if you are interested. (Thanks Michelle!)
EATING More good news to report! Ty is eating many different baby food flavors this week! Turns out that he will eat anything I put in his cereal bottle as long as he can feed himself. Apparently, he has either gotten past the taste issue, or it was not food taste aversion to begin with but an aversion to the spoon (or an aversion to mom feeding him?). I have not tried the spoon again this week. My first goal was just to get him to eat so I want to get him well established with eating solids and then I’ll give spoon feeding another try.
Last week I was driving my mother in love nuts! She has been trying to convince me to paint my walls for a long time and I adjust very slowly to change. We went round and round trying to decide colors. I would settle on something than change my mind again minutes later. (Mom…I am still not completely settled on our idea yet….sorry!!) I am a white wall gal and the thought of coloring my walls just sends shivers down my spine. I am truly at the point of wanting to do it but I am afraid that I will hate it. Of course my MIL keeps telling me "Quit worrying! We can repaint!" I know that but the hassle of that…..aaaghhh!! Anyhow, while thinking about my paint colors it reminded me of a conversation with my SIL Brooke. She is a "just the facts ma’m" person so she’ll never read this little obscure paragraph LOL!:)
Brooke and I are opposites in many areas. She loves to paint her walls and changes colors all the time. She also loves to experiment and this really gets me nervous. When she moved into her house 2 years ago she decided to "paper bag" the office wall. The thought made me want to hyperventilate;). I tried to talk her out of it because I knew that she would get bored with it eventually and you can’t remove paper bagging without replastering!!
In her last trimester she finally decided that the office needed to be converted to Graham’s room. She chose a beach theme and was anxious to get started. Uh Oh! What to do with that wall? Imagine the scene….Aimee, Jodi, myself and Brooke were sitting together discussing ideas for this room. The dreaded wall discussion came up. Brooke, realizing the bagged wall just wasn’t going to work invited us all to a little work day to figure out what to do about it. Jodi, Aimee, and I stared speechless. We were desperate for a solution that would NOT include a work party. A thousand thoughts were running through my brain (not the least of which was I TOLD YOU SO LOL!). In record time, Miss Aimee saved the day! In a panic;), she suggested Brooke make that wall look like a beach hut with a bamboo ledge over the window. Go Aimee!!! Brooke loved the idea and the room is adorable. Jodi and I paid Aimee off later (just joking:).
Why did I share that? I have no idea:). Just thinking about my walls today and that brown bag wall is always going to make me smile…because it isn’t mine…and if I play my cards right, I’ll never have to worry about it! LOL!!!! Sheeeshhhh…the things that keep me up nights!